On Monday morning in New Orleans, 23-year-old Daniel Cressy rang a bell inside Manning Family Children’s hospital and stepped into what he calls “Life 2” — a life, for the first time, free of sickle cell disease. His treatment using Casgevy’s CRISPR/Cas9, a gene-editing technology, makes him the first patient in Louisiana and the Gulf […]
sickle cell disease
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Medicaid Tries New Approach With Sickle Cell
Originally published by KFF Health News. Serenity Cole enjoyed Christmas last month relaxing with her family near her St. Louis home, making crafts and visiting friends. It was a contrast to how Cole, 18, spent part of the 2024 holiday season. She was in the hospital — a frequent occurrence with sickle cell disease, a […]
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Could Artificial Intelligence Give Black Patients More Power in Medical Research?
Her cries ring out from behind the emergency room curtain where she’s laying. “She says she can’t breathe,” someone says in the background. Then, the voices blend together. “Just bear with us one second.” “There’s a crisis.” The video has gone viral on TikTok since its upload in 2021. The words, “This is what a […]
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A Game-Changing Cure for Sickle Cell May Be Coming
Black physicians are excited about a groundbreaking gene-editing treatment for sickle cell disease that a federal advisory panel deemed safe enough for clinical use this week — but they also worry about access. “It offers a lot of potential,” Dr. Oyebimpe Adesina, a hematologist at the University of California Davis, told Capital B Tuesday. “But […]
